I had some x-rays taken a couple weeks ago for my chest, and the results included showing my “bamboo spine”. (They also showed I have some granulomas in my lungs, but she said not to worry about it.) Well, I had told them I had a diagnosis of ankylosing spondylitis (aka Bamboo Spine or Marie-Strumpel’s Disorder). But they ignored that, and, on the basis of this one x-ray, said I had DISH (Diffuse Idiopathic Skeletal Hyperostosis, or Forestier’s Disease).
So what’s the difference?
Forestier’s Disease usually gets diagnosed in one’s 60s and rarely earlier. Marie-Strumpel’s Disorder usually gets diagnosed by the time one is in one’s 30s. There may be a genetic aspect to Marie-Strumpel’s. The writeups in Wikipedia and WebMD say they are entirely different, and then talk about their similarities.
The first known onset of this disorder was when I was about 33, but it was not diagnosed until my chiropractor in Asheville took x-rays (my previous chiropractors never took x-rays, which is interesting as most chiropractors do that first thing).
What about treatment?
There isn’t any, other than chiropractic or massage therapy. NSAIDs (naproxen, ibuprofen) are shown to slow the spread and deal with the pain.
Here’s the good part. Due to my medically-compromised kidneys, I’m not supposed to take NSAIDS.